Help our voices be heard!In the UK, 3.5 million people live with a rare disease, yet only 1 in 10 has a central point of contact to coordinate their care. Without a dedicated pathway, vulnerable adults with complex needs often fall through the cracks of the system, facing fragmented care, delays, and avoidable suffering. These petitions calls for policy changes to ensure a coordinated and compassionate approach for those who need it most.
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Sign the petition today and help create a lifeline for those living with rare diseases.
